Cystic Fibrosis Foundation

EIN 131930701 Public Charity

Bethesda, MD 20814

https://www.cff.org
Annual Giving
$788.0M
3,008 grants · avg $157.6M/yr
public charity (Form 990), grant-level detail not in 990-PF database
$100M+/yr
mega funder
capacity
$132K
typical big bets · $63K–$259K
grant size
86%
deep partner · 262/305 multi-year
repeat
305
Distinct Recipients

About

The Cystic Fibrosis Foundation, established 1955, leads the fight to cure cystic fibrosis and improve the lives of those with the disease. CFF funds research, drug development, and accredited care centers. It has pioneered the 'venture philanthropy' model for CF therapies.

Focus Areas

CF research Drug development Accredited care centers Patient support

Application Information

Accepts Unsolicited Proposals Yes
How to Apply CFF funds research, fellowships, clinical trials, and care centers through competitive cycles. Academic affiliation typical for research grants. Care center accreditation cycles annually. Review cff.org/grants-contracts for cycles.

Grant Size Distribution

Based on 3008 grants on record

Minimum
$3K
25th Pctl
$63K
Median
$132K
Average
$262K
75th Pctl
$259K
Maximum
$19.6M

Geographic Distribution

Texas Counties Served

4.8% of US grants · Rank #6 of 48 states $30.6M across 143 grants 10 of 254 counties

Top 10 counties

  1. 1 Harris 38 grants · $12.2M
  2. 2 Dallas 40 grants · $9.5M
  3. 3 Travis 10 grants · $2.3M
  4. 4 Tarrant 12 grants · $2.2M
  5. 5 Bexar 16 grants · $2.1M
  6. 6 Smith 10 grants · $842K
  7. 7 Nueces 5 grants · $466K
  8. 8 Bell 5 grants · $458K
  9. 9 Lubbock 5 grants · $303K
  10. 10 Brazos 2 grants · $280K

Grants Awarded (3,008 total)

Purpose
Seattle Children'S Hospital Seattle, WA $19,631,929 CLINICAL RESEARCH 2020
Seattle Children'S Hospital Seattle, WA $9,086,103 CLINICAL RESEARCH 2019
Seattle Children'S Hospital Seattle, WA $8,993,639 CLINICAL RESEARCH 2018
Seattle Children'S Hospital Seattle, WA $8,852,451 CLINICAL RESEARCH CENTER 2019
Seattle Children'S Hospital Seattle, WA $8,041,150 CLINICAL RESEARCH 2021
Seattle Children'S Hospital Seattle, WA $8,025,599 CLINICAL RESEARCH CENTER 2018
Seattle Children'S Hospital Seattle, WA $7,610,499 CLINICAL RESEARCH CENTER 2022
Seattle Children'S Hospital Seattle, WA $6,399,823 CLINICAL RESEARCH STUDY 2022
Seattle Children'S Hospital Seattle, WA $6,361,303 CLINICAL RESEARCH CENTER 2021
Healthwell Foundation Gaithersburg, MD $5,600,000 PATIENT ASSISTANCE 2022
Seattle Children'S Hospital Seattle, WA $5,555,719 CLINICAL RESEARCH 2022
Seattle Children'S Hospital Seattle, WA $4,994,019 CLINICAL RESEARCH CENTER 2020
Healthwell Foundation Gaithersburg, MD $4,800,000 PATIENT ASSISTANCE 2021
Trustees of Dartmouth College Hanover, NH $4,317,660 QUALITY IMPROVEMENT 2019
Healthwell Foundation Gaithersburg, MD $4,200,000 PATIENT ASSISTANCE 2020
State University of Iowa Iowa City, IA $3,706,113 THERAPEUTICS DISCOVERY RESEARCH 2022
University System of New Hampshire Durham, NH $3,531,889 QUALITY IMPROVEMENT 2021
Healthwell Foundation Gaithersburg, MD $3,400,000 PATIENT ASSISTANCE 2019
Jaeb Center for Health Research Foundation Inc Tampa, FL $3,232,069 CLINICAL RESEARCH STUDY 2022
Children'S Hospital Medical Center Cincinnati, OH $3,009,161 CLINICAL CARE RESEARCH 2021
Children'S Hospital Medical Center Cincinnati, OH $2,927,422 CLINICAL CARE RESEARCH 2019
The University of North Carolina at Chapel Hill Chapel Hill, NC $2,856,504 THERAPEUTICS DISCOVERY RESEARCH 2019
University System of New Hampshire Durham, NH $2,777,411 QUALITY IMPROVEMENT 2022
Healthwell Foundation Gaithersburg, MD $2,750,000 PATIENT ASSISTANCE 2018
Children'S Hospital Corporation (Boston Children'S Boston, MA $2,679,950 ADHERENCE 2018

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