CHDI Foundation Inc
EIN 731683871Total Given 2022–2024
$1.5M
16 grants · $497K avg/year
based on 3 yrs of IRS 990-PF records on file
$100K+/yr
local funder
capacity
$75K
typical mid grants · $14K–$135K
grant size
44%
supporter · 4/9 multi-year
repeat
$91.6M
Assets (2024)
9
Distinct Recipients
Focus Areas
Application Information
Accepts Unsolicited Proposals
No — Preselected Only
Phone
(973) 597-2510
Financial Trends
Giving Over Time
Total Assets Over Time
View financial data as table
| Year | Total Giving | Total Assets | Revenue | Grants |
|---|---|---|---|---|
| 2022 | $225K | $101.7M | $151.1M | 3 |
| 2023 | $476K | $79.6M | $152.5M | 5 |
| 2024 | $790K | $91.6M | $206.6M | 8 |
Grant Size Distribution
Based on 16 grants on record
Minimum
$5K
25th Pctl
$14K
Median
$75K
Average
$93K
75th Pctl
$135K
Maximum
$337K
Geographic Distribution
Officers & Directors
TH
Timothy Hentzel
3+ yrs
Vice President/Treasurer/Secretary
Leadership
RI
Robi Blumenstein-pd thru CHDI Mgt I
3+ yrs
President CHDI Mgt Inc
Leadership
KS
Kenneth J Slutsky
3+ yrs
Dir./President/Assistant Treasurer/Assistant Sec
Leadership
AM
Alexandra P Mansbach
3+ yrs
Director
TS
Thomas D Stern
3+ yrs
Director
JM
John Maraganore
3+ yrs
Director
EF
Elizabeth Fascitelli
3+ yrs
Director
JB
James Bradner
3+ yrs
Director
CA
Christopher Austin
3+ yrs
Director
TL
Triplet Investment Company LLC
3+ yrs
Member
KS
Kenneth J Slutsky
3+ yrs
Dir/President/Assistant Treasurer/Assistant Sec
Leadership
RI
Robi Blumenstein-pd thru CHDI Mgt I
3+ yrs
President CHDI Mgt Inc
Leadership
TH
Timothy Hentzel
3+ yrs
Vice President/Treasurer/Secretary
Leadership
JM
John Maraganore
3+ yrs
Director
CA
Christopher Austin
3+ yrs
Director
JB
James Bradner
3+ yrs
Director
EF
Elizabeth Fascitelli
3+ yrs
Director
AM
Alexandra P Mansbach
3+ yrs
Director
TS
Thomas D Stern
3+ yrs
Director
TL
Triplet Investment Company LLC
3+ yrs
Member
KS
Kenneth J Slutsky
3+ yrs
Dir/President/Assistant Treasurer
Leadership
RI
Robi Blumenstein-pd thru CHDI Mgt I
3+ yrs
President CHDI Mgt Inc
Leadership
AM
Alexandra P Mansbach
3+ yrs
Dir/Vice President/Secretary
Leadership
TH
Timothy Hentzel
3+ yrs
Treasurer/Assistant Secretary
Leadership
TS
Thomas D Stern
3+ yrs
Director
JM
John Maraganore
3+ yrs
Director
EF
Elizabeth Fascitelli
3+ yrs
Director
JB
James Bradner
3+ yrs
Director
CA
Christopher Austin
3+ yrs
Director
TL
Triplet Investment Company LLC
3+ yrs
Member
Grants Awarded (16 total)
| Purpose | ||||
|---|---|---|---|---|
| Huntington's Disease Society of America | New York, NY | $337,020 | Support for fellowship programs and convention | 2024 |
| Johns Hopkins University | Baltimore, MD | $215,000 | Establish a medical center | 2023 |
| Johns Hopkins University | Baltimore, MD | $195,000 | Establish a medical center | 2024 |
| University of Kentucky Research Foundation | Lexington, KY | $135,175 | Support for HTT lowering in non-human primates | 2022 |
| University of Kentucky Research Foundation | Lexington, KY | $135,175 | Support for HTT lowering in non-human primates | 2023 |
| University of Kentucky Research Foundation | Lexington, KY | $135,175 | Support for HTT lowering in non-human primates | 2024 |
| Huntington's Disease Society of America | New York, NY | $90,000 | Support for fellowship programs | 2023 |
| Huntington's Disease Society of America | New York, NY | $75,000 | Support for fellowship programs | 2022 |
| National Institute of Diabetes and Digestive and Kidney Diseases | Bethesda, MD | $75,000 | Support for the purchase of lab consumables | 2024 |
| Huntington Study Group Ltd | Rochester, NY | $30,000 | Support for annual meeting | 2024 |
| Huntington Study Group Ltd | Rochester, NY | $25,601 | Support for annual meeting | 2023 |
| Huntington Study Group Ltd | Rochester, NY | $15,000 | Support for annual meeting | 2022 |
| Huntington's Disease Youth Organization | Livonia, MI | $10,000 | Support for annual meeting | 2023 |
| Help 4 HD International Incorporated | Elk Grove, CA | $7,800 | Support for a conference | 2024 |
| Federation of American Societies for Experimental Biology | Rockville, MD | $5,000 | Support for medical meeting | 2024 |
| Hereditary Disease Foundation | New York, NY | $5,000 | Support for a fundraising event | 2024 |