Acid Maltase Deficiency Association Inc
EIN 742760695Total Given 2018–2024
$1.1M
7 grants · $162K avg/year
based on 7 yrs of IRS 990-PF records on file
$100K+/yr
local funder
capacity
$122K
typical big bets · $107K–$200K
grant size
0%
transactional · single-year
repeat
$813K
Assets (2024)
7
Distinct Recipients
About
THE STATE OF TEXAS DOES NOT IMPOSE A REQUIREMENT FOR A PRIVATE FOUNDATION TO FILE A COPY OF ITS FORM 990-PF WITH THE ATTORNEY GENERALS OFFICE. AS WITH ALL REQUESTS, A COPY OF THE CORPORATIONS FORM 990-PF IS MADE AVAILABLE FOR INSPECTION UPON ANY REQUEST.
Focus Areas
Application Information
Accepts Unsolicited Proposals
No — Preselected Only
Contact Person
Dr Frederic Lofaso
Phone
(210) 494-6144
Financial Trends
Giving Over Time
Total Assets Over Time
View financial data as table
| Year | Total Giving | Total Assets | Revenue | Grants |
|---|---|---|---|---|
| 2017 | N/A | $1.1M | $346K | N/A |
| 2018 | $236K | $1.0M | $309K | 2 |
| 2019 | $200K | $952K | $327K | 1 |
| 2020 | $200K | $831K | $285K | 1 |
| 2021 | N/A | $876K | $177K | N/A |
| 2022 | N/A | $988K | $248K | N/A |
| 2023 | $300K | $790K | $282K | 1 |
| 2024 | $200K | $813K | $876K | 2 |
Grant Size Distribution
Based on 7 grants on record
Minimum
$100K
25th Pctl
$107K
Median
$122K
Average
$162K
75th Pctl
$200K
Maximum
$300K
Geographic Distribution
Officers & Directors
TH
Tiffany House
President
Leadership
RH
Randall H House
Chairman
Leadership
MH
Marylyn House
Vice President/Sec/Treasurer
Leadership
MH
Marylyn House
Vice President/Sec/Treasurer
Leadership
TH
Tiffany House
President
Leadership
RH
Randall H House
Chairman
Leadership
MH
Marylyn House
Vice President/Sec/Treasurer
Leadership
RH
Randall H House
Chairman
Leadership
TH
Tiffany House
President
Leadership
MH
Marylyn House
Vice President/Sec/Treasurer
Leadership
TH
Tiffany House
President
Leadership
RH
Randall H House
Chairman
Leadership
TH
Tiffany House
President
Leadership
MH
Marylyn House
Vice President/Sec/Treasurer
Leadership
RH
Randall H House
Chairman
Leadership
TH
Tiffany House
President
Leadership
RH
Randall H House
Chairman
Leadership
MH
Marylyn House
VPSecTreas
TH
Tiffany House
President
Leadership
RH
Randall H House
Chairman
Leadership
MH
Marylyn House
VPSecTreas
RH
Randall H House
Chairman
Leadership
TH
Tiffany House
President
Leadership
MH
Marylyn House
VPSecTreas
Grants Awarded (7 total)
| Purpose | ||||
|---|---|---|---|---|
| Dr Benedikt Schoser | Munich, None | $300,000 | 2021 HELEN WALKER POMPE DISEASE RESEARCH GRANT | 2023 |
| Erasmus University Rotterdam | Rotterdam, None | $200,000 | RESEARCH ON TREATMENT FOR POMPE DISEASE | 2020 |
| ICGEB - Dr Andrea Dardis | Trieste, None | $200,000 | Research on treatment for Pompe disease | 2019 |
| Dr Frederic Lofaso | Paris, None | $121,959 | Research on acid maltase deficiency myopathy | 2018 |
| Dr Virginia KimonisUniv of Calif | Irvine, CA | $114,253 | Research on treatment for pompe disease | 2018 |
| M6P Therapeutics Inc | St Louis, MO | $100,000 | TO FURTHER RESEARCH OF DISEASE | 2024 |
| McMaster University | Hamilton, None | $100,000 | TO FURTHER RESEARCH OF DISEASE | 2024 |