Pacs1 Syndrome Research Foundation
EIN 826460046 Private Foundation
Possibly inactive.
Last 990-PF filing on record is from 2023
(3 years ago). Verify before investing time in an application.
Total Given 2017–2023
$1.2M
18 grants · $178K avg/year
based on 7 yrs of IRS 990-PF records on file
$100K+/yr
local funder
capacity
$53K
typical mid grants · $22K–$65K
grant size
42%
supporter · 5/12 multi-year
repeat
$610K
Assets (2023)
12
Distinct Recipients
Focus Areas
Application Information
Accepts Unsolicited Proposals
No. Preselected Only
Contact Person
Northwestern University
Phone
(203) 918-2740
Financial Trends
Giving Over Time
Total Assets Over Time
View financial data as table
| Year | Total Giving | Total Assets | Revenue | Grants |
|---|---|---|---|---|
| 2017 | $212K | $48K | $290K | 2 |
| 2018 | $209K | $293K | $495K | 1 |
| 2019 | N/A | $189K | $112K | N/A |
| 2020 | $171K | $159K | $177K | 3 |
| 2021 | $25K | $576K | $477K | 1 |
| 2022 | $329K | $492K | $405K | 6 |
| 2023 | $303K | $610K | $618K | 5 |
Grant Size Distribution
Based on 18 grants on record
Minimum
$4K
25th Pctl
$22K
Median
$53K
Average
$69K
75th Pctl
$65K
Maximum
$209K
Geographic Distribution
Texas Counties Served
16.7% of US grants
· Rank #2 of 9 states
$399K across
3 grants
2 of 254 counties
Top 2 counties
- 1 Harris
- 2 Dallas
Officers & Directors
Grants Awarded (18 total)
| Purpose | ||||
|---|---|---|---|---|
| University of Pittsburgh | Pittsburgh, PA | $208,802 | CONTRIBUTION TO HELP IDENTIFY SMALL MOLECULE COMPOUNDS THAT MAY LEAD TO THERAPIES FOR TREATING PACS-1 SYNDROME. | 2018 |
| Hitgen Pharmaceuticals Inc | Houston, TX | $200,000 | DEL LIBRARY SCREEN TO FIND POTENTIAL BINDING PARTNER / THERAPEUTIC TARGETS FOR PACS1 SYNDROME. | 2022 |
| The University of Texas Southwestern Medical Center | Dallas, TX | $191,340 | EXPLORING THE STRUCTURAL BIOLOGY OF THE PACS1 - WDR37 CONNECTION. | 2023 |
| University of Pittsburgh | Pittsburgh, PA | $147,539 | TESTING EFFORTS TO IDENTIFY SMALL MOLECULE COMPOUNDS THAT MAY LEAD TO THERAPIES FOR TREATING PACS-1 SYNDROME. | 2017 |
| Northwestern University | Evanston, IL | $65,000 | Study of Neuronal Cells and Human forebrain organ | 2020 |
| University of Pittsburgh - of the Commonwealth System of Higher Education | Pittsburgh, PA | $65,000 | TO FURTHER PACS1 SYNDROME RESEARCH | 2022 |
| Duke University | Durham, NC | $64,590 | TO STUDY RNA MUTATION IN A VARIETY OF TRANSGENIC REPORTERS TO MONITOR EFFECTS ON PAC1 SYNDROME. | 2017 |
| The Jackson Laboratory | Bar Harbor, ME | $58,803 | PACS1 SYNDROME MOUSE MODEL DEVELOPMENT AND EVALUATION OF THE POTENTIAL GENOME EDITING AS A THERAPEUTIC INTERVENTION... | 2023 |
| University of Pittsburgh | Pittsburgh, PA | $55,703 | Studies of mouse models of PACS1 Syndrome | 2020 |
| University of California San Diego | La Jolla, CA | $50,000 | Study of C-elegans model of PACS1 Syndrome | 2020 |
| The Regents of the University of California | Oakland, CA | $25,000 | CONTRIBUTION FOR STUDY OF C-ELEGANS MODEL WHICH MAY LEAD TO THERAPIES FOR TREATING PACS-1 SYNDROME. | 2021 |
| Across Healthcare | Carrollton, GA | $25,000 | PACS1 SYNDROME RESEARCH FOUNDATION OWNED PATIENT DATA COLLECTION PLATFORM TO SUPPORT PACS1 FOUNDATION RESEAERCH... | 2023 |
| Northwestern University | Evanston, IL | $25,000 | GRANT TO UNCOVER BIOMARKERS OF PACS1 SYNDROME, RESULTS TO BE SHARED VIA AN OPEN-SOURCE DATA-SHARING PLATFORM WITH... | 2022 |
| Broad Institute | Cambridge, MA | $20,874 | CELL-BASED SCREEING STUDY USING PATIENT FIBROBLASTS. | 2023 |
| Across Healthcare | Carrollton, GA | $20,000 | PACS1 SYNDROME RESEARCH FOUNDATION OWNED PATIENT DATA COLLECTION PLATFORM TO SUPPORT PACS1 FOUNDATION RESEAERCH... | 2022 |
| Broad Institute | Cambridge, MA | $15,235 | CELL-BASED SCREEING STUDY USING PATIENT FIBROBLASTS. | 2022 |
| Hitgen Pharmaceuticals Inc | Houston, TX | $7,240 | DEL LIBRARY SCREEN TO FIND POTENTIAL BINDING PARTNER / THERAPEUTIC TARGETS FOR PACS1 SYNDROME. | 2023 |
| Wicell Research Institute Inc | Madison, WI | $4,045 | PAYMENT TO MANUFACTURE STEM CELLS OF PACS1 PATIENTS TO SEND TO RESEARCH LABS FOR VARIOUS TESTING. | 2022 |
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